Ebook The Thing I Miss Most is My Mind An Insider Guide to Achieving Positive Results When Confronting Alzheimer Bettye Martin Musham 9781936712083 Books
Where do you go when you first experience concern about your slowing memory? The Thing I Miss Most is My Mind is a good place to start for you, your closest friends and your family. No one knows what goes on in the mind of someone who is first experiencing the beginning of Alzheimer's. A guide to help yourself deal with the beginning symptoms can be reassuring when this happens. As soon as these symptoms are apparent to others, the search for help and information starts. It is helpful to have a to-do list as it makes one feel in control in organizing the tools needed to plan future options. Describing the journey that others have experienced with accurate information can be an aid in making decisions as this disease progresses. Medical, legal, financial resources are presented in easy to understand language. The role of caregivers and other resources and options for care is discussed along with the financial alternatives. Alzheimer's is a long-term terminal disease that effects many people.
As this disease is on-going for several years, consideration of the caregivers is addressed. Even after death, recovery of the caregivers is addressed. The Thing I Miss Most is My Mind can be an easy reference to provide information and comfort.
Ebook The Thing I Miss Most is My Mind An Insider Guide to Achieving Positive Results When Confronting Alzheimer Bettye Martin Musham 9781936712083 Books
"Seems like almost every day we are told that a friend, a lover, or a relative has been diagnosed with the onset of Alzheimer’s, which in recent years has been added to the list of diseases we most dread. It’s frightening. And if you happen to be the one responsible for the victim’s care, you have lots of questions: What are its stages? How should you cope with legal and financial matters? What is the best way to provide care? How will you deal with the inevitable end? And meanwhile, how should you take care of yourself?
Questions like these can be found in Bettye Musham’s book, which was motivated by empathy for people who find themselves in the same position she was in when her husband, Bill, the love of her life, was diagnosed.
It is not a scholarly treatise, but it is clearly informed by medical knowledge Musham acquired in nursing school years ago. She explains the stages of the disease clearly and accurately. Her chapter on the various kinds of memory is useful background for understanding what is going on in the victim’s mind. She provides numerous references to other publications and to agencies that can offer specific kinds of help.
Her citations range from Dylan Thomas’s poetic diatribe against death of his father (“Do not go gentle into that good night, but rage, rage against the dying of the lightâ€), to Kübler-Ross’s well-known books on coping with death and dying. Musham wisely says that the stages of grief a dying person experiences are the stages of grief experienced by caregivers and others left behind.
And there is a glossary at the end to help you understand the myriad technical terms that you will suddenly encounter as a caregiver.
In the main, it is the voice of experience, eager to share the problems she encountered and the solutions she devised as she cared for Bill during his final years.
The book is organized so that it can be read from cover to cover, or merely consulted by scanning the chapter titles for the information you need when you need it.
When she writes things like “Accept reality; don’t fight it,†or “Forget about the memory lapses,†you don’t hear them as platitudes spoken by someone who doesn’t know the pain you feel. You hear them as wisdom drawn from suffering that you yourself might be enduring. When she tells you about personality changes Bill went through, including expressions of overt hostility to the person dedicating herself to his care, you can brace yourself for similar events. You will recognize them when they occur and understand that it is the disease speaking, not the person. And you will take strength from Musham’s example, conveyed with neither self-congratulation nor self-pity.
In addition to running a demanding international business, Musham had a job to do at home. It was a labor of love—sometimes of tough love. And now she has written a book she hopes will guide and comfort people who are desperate for advice about facing the challenges she faced and surviving the ordeal intact despite the loss."
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Tags : The Thing I Miss Most is My Mind An Insider's Guide to Achieving Positive Results When Confronting Alzheimer's [Bettye Martin Musham] on . Where do you go when you first experience concern about your slowing memory? The Thing I Miss Most is My Mind is a good place to start for you,Bettye Martin Musham,The Thing I Miss Most is My Mind An Insider's Guide to Achieving Positive Results When Confronting Alzheimer's,Fedora Press,1936712083,BIOGRAPHY AUTOBIOGRAPHY / Personal Memoirs,Biography Autobiography/Personal Memoirs,SELF-HELP / General
The Thing I Miss Most is My Mind An Insider Guide to Achieving Positive Results When Confronting Alzheimer Bettye Martin Musham 9781936712083 Books Reviews :
The Thing I Miss Most is My Mind An Insider Guide to Achieving Positive Results When Confronting Alzheimer Bettye Martin Musham 9781936712083 Books Reviews
- This book would be a great resource for anyone who is confronting a diagnosis of Alzheimer's. It is packed with comprehensive information for caregivers, patients, family and friends. It is an exhaustive compilation of symptoms, treatment, how to seek help, how to set up your home, and when the time comes, how to find quality residential care. It is written in clear and concise language.
What I found uniquely interesting and useful is the author's very frank personal advice based on her own experience. Her initial confusion about her husband's symptoms and his initial reluctance to accept the diagnosis, as well as her dealings with family members who had different ideas about treatment are very moving. How she dealt with each of these situations are illuminating, and would be useful to anyone confronting this disease. - Thank you Bettye Musham! This book allowed me to revisit the years of my own mother's dementia with a new understanding and even appreciation of her condition, Although, I regret that I did not have this incredibly candid and loving guide at the time - In consolation, I know that this will not be the only time I will all be confronted with dementia personally, in family, friends and loved ones. Most notable throughout the book is the love, dignity, compassion and respect Ms. Musham displayed in the care of her beloved husband. Too often caregivers give in to the hopelessness and combativeness, wanting to "fix" a situation. Ms. Musham introduces us to techniques (Knack) numerous checklists and resources to avoid the dark holes and live positively in the present . The discussion of Retrogenesis and Staging I found to be illuminating. The reflections on Death and Post Traumatic Growth, uplifting.
This book is timeless and should be considered not only an "insider's" guide but a "survivor's guide" in living with a diagnosis of Alzheimer's. - When you or a loved one receives a diagnosis of Alzheimer's, Musham's book is invaluable. Her book is a memoir, a memoir of love and pain, and filled with the answers to questions you hoped you would never ask. It is an invaluable book that covers every aspect of every issue confronting the caregiver, from finances, to physicians, and even how to manage the inevitable end of life care and family issues Musham provides the expert and researched advice that is needed by everyone in this terrible situation. She details the disease progression and how to best manage it, and gives practical solutions to what seem intractable and heartbreaking problems.
In summary, a wonderful resource and Musham has done a great public service in compiling all of this information and guidance in one volume. This is the book which I have been looking for for months!!! - Seems like almost every day we are told that a friend, a lover, or a relative has been diagnosed with the onset of Alzheimer’s, which in recent years has been added to the list of diseases we most dread. It’s frightening. And if you happen to be the one responsible for the victim’s care, you have lots of questions What are its stages? How should you cope with legal and financial matters? What is the best way to provide care? How will you deal with the inevitable end? And meanwhile, how should you take care of yourself?
Questions like these can be found in Bettye Musham’s book, which was motivated by empathy for people who find themselves in the same position she was in when her husband, Bill, the love of her life, was diagnosed.
It is not a scholarly treatise, but it is clearly informed by medical knowledge Musham acquired in nursing school years ago. She explains the stages of the disease clearly and accurately. Her chapter on the various kinds of memory is useful background for understanding what is going on in the victim’s mind. She provides numerous references to other publications and to agencies that can offer specific kinds of help.
Her citations range from Dylan Thomas’s poetic diatribe against death of his father (“Do not go gentle into that good night, but rage, rage against the dying of the lightâ€), to Kübler-Ross’s well-known books on coping with death and dying. Musham wisely says that the stages of grief a dying person experiences are the stages of grief experienced by caregivers and others left behind.
And there is a glossary at the end to help you understand the myriad technical terms that you will suddenly encounter as a caregiver.
In the main, it is the voice of experience, eager to share the problems she encountered and the solutions she devised as she cared for Bill during his final years.
The book is organized so that it can be read from cover to cover, or merely consulted by scanning the chapter titles for the information you need when you need it.
When she writes things like “Accept reality; don’t fight it,†or “Forget about the memory lapses,†you don’t hear them as platitudes spoken by someone who doesn’t know the pain you feel. You hear them as wisdom drawn from suffering that you yourself might be enduring. When she tells you about personality changes Bill went through, including expressions of overt hostility to the person dedicating herself to his care, you can brace yourself for similar events. You will recognize them when they occur and understand that it is the disease speaking, not the person. And you will take strength from Musham’s example, conveyed with neither self-congratulation nor self-pity.
In addition to running a demanding international business, Musham had a job to do at home. It was a labor of love—sometimes of tough love. And now she has written a book she hopes will guide and comfort people who are desperate for advice about facing the challenges she faced and surviving the ordeal intact despite the loss.